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Next steps

The 2024 Conference was a great success and it was great to see so many people mixing with speakers and third parties over the two days. Next step on this is to process the content, photography, and AV recordings and start to share some of the content across a much wider UK audience. COMING SOON!
In case you hadn't already noticed, we have a new Events page on the website. This is an exciting new initiative which opens up hundreds of inclusive events all around the UK for people to participate in or just meet up and support others. We've just completed Run Alton Towers and now one of the trustees is running Santa in the City (London) in December. This is followed in February 2025 with Sandro travelling from Italy to run a Half-Marathon in Barcelona for Stickler Syndrome UK.

We've added more to our highlights... including a fun day out in May at Colchester Zoo for the Colchester Stampede. And if there's any keen road cyclists amongst us?... May 2025 sees the Etape Caledonia in the Scottish Highlands, and the Tour of Pembrokeshire in Wales - everything from 25 to 105 miles.
Our social media volunteer team is keeping content refreshed, and our fifth edition of 'Briefs' went out to over 170 subscribers. Subscribe now on the About page of this website to get access to new content, offers and monthly 'sur'prizes.
Having completed work in Clinic 14 at Addenbrooke's, we're looking at piloting some more projects for the younger members of our community. Discussions are expected to begin this Autumn on further initiatives to give children positive experiences with their hospital visits. Watch this space!
Following the new Physiotherapy factsheet on the Downloads page, we now have the first two of the MSK factsheets. 'What is Stickler Syndrome' and 'Hypermobility' are now available for download. More will follow in the coming weeks.

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