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Symptoms and referrals

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The syndrome

Stickler Syndrome is a genetic condition affecting connective tissue (essentially collagen), with variable symptoms.

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Personal stories

Our community is growing

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Referrals

Stickler Syndrome UK is keen to help progress referrals wherever you are across the UK and the Republic of Ireland.

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News

October 11, 2025

'Join the dots' awareness campaign

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October 1, 2025

Santa in the City, 2025

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September 20, 2025

Tiffany and Otto

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September 20, 2025

The 2025 Objectives survey

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September 20, 2025

Our first pilot fundraiser

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Fundraising and Events

Get involved

We have lots of exciting events for all ages and abilities to get involved with.

View and find events
Group photo of delegates and speakers at the 2024 Stickler Syndrome Conference.
Consultant Plastic & Cleft Surgeon, Matt Fell, in discussion with delegates at the 2024 Stickler Syndrome Conference.
Two fundraisng runners at the Londo Marathon 2025
Mother and son celebrating mother's London marathon medal
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Support and guidance

Support for all ages

Visit our library of downloadable communications to help improve the quality of your life.

View Resources
Joints, Spine and Bones factsheetQuality Of Life factsheetPain Management factsheet