What's new?

NEW ON OUR YouTube channel... We have the full opening presentation from Thomas Nixon (Ophthalmology Consultant and Research Associate at Addenbrooke's Hospital and University of Cambridge) at the 2024 Conference.

This is a solid overview of Stickler Syndrome and its numerous sub-types, putting a wider perspective on the the variables around diagnosis. Well worth a listen for the informed and the unaware alike.

Click on the link, below, or the YouTube icon at the top-right of our website pages to view our current video clips.
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Thomas Nixon (2024 Conference)
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If you have a YouTube account, please don't forget to subscribe while you're in there - this all goes to help in the future as we build up numbers.

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Our 'Santa in the City' event raised an amazing £1,180... with massive thanks to sponsors who backed them on a very wet night in London. Well done Ian and Cocker Spaniel 'Belle'!

On the night's events, Ian recalled, "It was a shame about the rain, but what a great way to kick-off the festivities in the shadow of St Paul's... groups of people running, walking, singing... cars tooting all the Santas along the route... definitely doing this again, but next year with a group of friends to get the absolute best out of the night! And Belle was a star!"

There's loads more 'get together' events... check out the Events page with our advertised venues and also your own area for what's available through the year all around the UK and elsewhere.
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Want to save on postage this Christmas?... Just download one of our festive online greetings card scenes as a PNG file from our Downloads page. You can choose this instead of costly postage on greetings cards by adding to your social media or emails - and let your friends know that you're donating the money instead to the Stickler Syndrome UK charity. And an added bonus of not having writer's cramp this year!

This year's funds from the PNG greetings cards will be going towards the 2025 Wellbeing and Mental Health Support pilot project, so you know you'll be doing something really worthwhile for people with Stickler Syndrome who are going through a difficult time.

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Watch out for upcoming charity surveys... as we start to help out with leading research projects around Stickler Syndrome testing and diagnosis. We need the numbers in response for the research to be effective, so please come forward when we post the surveys and give us your feedback (this will all be going to medical professionals who are working hard across the Stickler Syndrome symptoms to provide more information, swifter testing and diagnosis and earlier preventative treatments).

Be part of this with us!
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And let's not give up on Give as you Live. Well done to all of you who have signed up recently, we've seen some FREE DONATIONS starting to come in from over 6,000 contributing online retailers.

This is a great way to donate to a charity (or multiple charities) of your choice without it costing you anything... maybe just an extra little click on your browsing.
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Step 1 - Sign-up at www.giveasyoulive.com/how-it-works
Step 2 - Choose your charity/charities to support
Step 3 - Share with your friends and see how many you can get to join you in this great initiative.

And if you've signed up previously and not really used it, how about having another go at the link above (there's a Help button at the bottom of their web page if things aren't clear). Our top subscriber in the past 12 months has raised £89.

This is great for business purchases too, especially where the seemingly small percentages can amount to larger donations.‍‍