18 November, 2024
A FANTASTIC WEEKEND at the 'Run Alton Towers' charity event. The weather held out for us and we got to meet up with our runners and spectators.
So who took part for Stickler Syndrome UK?
Lizzy Oakley-Hannibal is fundraising for Stickler Syndrome UK
Lizzy completed the Half-Marathon and sported one of the new charity running vests. She followed the run with a quick return to the role of 'Mum', setting off with the children to CBeebies World.
Charlotte Jones is fundraising for Stickler Syndrome UK
Charlotte tackled the 5k Alton Towers course with Marcia.
Marcia Shaw is fundraising for Stickler Syndrome UK
Marcia ran the 5k course, retiring to the wheelchair on completion. In fact Marcia gave a heart-warming short interview with the event organisers which we hope we can retrieve and share in due course.
You can still support Lizzy, Charlotte and Marcia through the underlined links (above) as a thank you for their amazing efforts in raising funds and helping us to spread a little more awareness.
The charity would also like to thank all the spectators who made the journey to support the runners and be part of our very first event in the new 'UK-wide Events' programme. And of course, a massive "Thank you" to everyone who has made a donation on each of their JustGiving pages.
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This week is... Give as you Live week? 17-24 November, 2024.
This is where we get as many people as possible to sign-up for FREE DONATIONS to charities of your choice while they shop online. No cost to us while we browse - over 6,000 retailers are poised to send donations to our nominated charities. How to get started?...
Step 1 - Sign-up at www.giveasyoulive.com/how-it-works
Step 2 - Choose your charity/charities to support
Step 3 - Share with your friends and see how many you can get to join you in this great initiative.
Not yet convinced?... See what these charities have raised:
Cats' Protection: £65,000
Breast Cancer Now: £117,000
Macmillan Cancer Support: £117,000
Parkinson's UK: £38,000
British Heart Foundation: £23,000
Nearly £34 million raised for UK charities to date. 4.5-star Feefo rated and Platinum Award Winner for 2024.
This is a cost-free way to help Stickler Syndrome UK to grow, spread greater awareness, and make a much bigger input into ongoing research.