This is a list of some of the sites on the World Wide Web providing information on Stickler syndrome.
Medical Disclaimer: Visitors should be aware that medical practices and medicines used in the UK may be different to those used in other parts of the world. Conversely, treatments that may be obtainable in other parts of the world, may not be available in the UK. Stickler Syndrome UK lists these sites for information. Views and information supplied by them are not necessarily those of the SSUK.
www.sticklers.org The site of the US support group
Royal National Institute for the Blind has a section on retinal detachments and an area for parents of children with impaired vision
www.vrmny.com is a US site with information on the anatomy of the eye and details of retinal detachments
www.clapa.com the UK Cleft Lip and Palate Association.
There is a list server devoted to Stickler syndrome on the Internet which is organised by the US support group. You can subscibe to this if you wish and share experiences with other people affected by the condition. There is no editing of the content posted to this list.
How to subscribe for the List Server
This is an unmoderated mailing list for the discussion of Stickler Syndrome. The opinions expressed in this list are not necessarily those of the list host or list administrator. To subscribe to this list, send mail to major[email protected] with the single command “subscribe sip” (without the quotes) in the body of the email message.
For further details see http://www.sticklers.org/