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Living with Sticklers by Sherie

Hi everyone my daughter is due to go in and have her cyrotherapy on the 17th February and I am absolutely dreading it. She will only be fourteen months 🙁 which is younger then my son was when he had his done. He was 2 It was horrific when we had his done he went down really well but when we come round from the operation he screamed and was rubbing his eyes for over an hour. We couldn’t console him. It was awful. Then the next morning after the op his eyes were so swollen he couldn’t even open them. Not that this bothered him he was running around and playing quite happily. It took a good week or two for the swelling to go down with him and I kept him indoors away from people as best I could. Well I took him to my mum and dad’s on the train and I got some looks from people. It was upsetting, and it will be worse this time with my daughter as I will still have to do the school run. She’s having her operation on the Friday of half term then on the Monday I will be up the school. I’m dreading this and I will keep her hidden in the pram as much as I can. People can be really shocked and I don’t want to explain why her eyes are so swollen to the whole playground.
My son is now 6 and I’m starting to notice how the condition is affecting him. He does after school activities – swimming on a Monday which is great as there are not limitations with this sport and he’s doing really well. Apart from having to get a cab there and back as I can’t drive and it is costing a fortune. He does karate on a Wednesday which he is enjoying but we are only 2 sessions in at the moment so we will see how that goes. Then he does multisport on a Friday which he’s finding fun at the moment. But I think as he is still so young it’s not that competitive yet thank God. But the limitations i am noticing is that when all his friends are playing or doing football he runs a lot slower than them which makes him not want to participate. This is hard for me to watch as I’m sure it is for every parent as you want your child to be good at what they do and happy. This just worries me as I know in time it will get worse. I don’t think it’s as bad for girls but for boys it’s a lot worse as they are all competitive and as they get older it’s even more competitive, so this worries me. I obviously will still encourage him to do sports and participate and I just know its a lot more hard work for him then it is for the other children. I know for myself growing up I really suffered with my joints in my early teens and had physiotherapy, but I think as I was down as partially sighted and had a ‘disability’ I got a lot more support. Both my children are under a pediatrician so I’m glad we have support as when they get older. I want to make sure that their joints are well cared for.
As for me I’m going to start trying to go to the gym again, as I had my kids birthday party in December and the entertainer got us doing a parents jumping race obviously I lost which was very embarrassing. I cannot jump as my joints won’t allow it. I am struggling going up and down the stairs with my knees but O know I am not very active which isn’t helping and I’ve put half a stone on over Christmas which doesn’t help either, I feel so unfit and I am so behind compared to a lot of my friends. I am only 28 and i can’t run, jump, hop, it’s a joke. My body is more like a 50 year old then a 28 year old and I am hoping that watching my diet and trying to exercise more will help my joints. Hope everyone had a good Xmas and New Year and I will post after my daughters operation with a picture.

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