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Charity Announcement

We are saddened to inform all members of the death of our founder and president Wendy Hughes.  After a long battle with liver cancer she died peacefully at home with her family on 28 January 2019. Despite deteriorating health she continued to work tirelessly to further our cause with the NHS, Addenbrookes Hospital and other organisations.

The work will now begin to decide how we can take the charity forward.

9 thoughts on “Charity Announcement

  1. I am so saddened to hear this news & wish to send my heartfelt condolences to Wendy’s immediate family and her extended stickler family. Wendy has always been an inspiration in my eyes, a kind, wonderful woman to work with. I will miss her, if there is anything that we can do, now or in the future, please get in contact xx

  2. This lady will be missed by many I’m so grateful to have met her such a lovely person condolences to Conrad and her family

  3. Our family will be forever grateful to Wendy, who helped us through our diagnosis and directed us to Mr Martin Snead, Sister Annie McNinch, and all of the wonderful team at Addenbrooke’s Hospital. Rest in peace.

  4. The loss of someone dear to us is never easy, my
    sincere condolences to the whole family and fellow sticklers. She will always be remembered and be part of us.

  5. So sorry to hear this news. She was there to turn to when our son was diagnosed. The hospital at the times didnt seem to know much about the condition. RIP Wendy and thank you for all your dedication. Condolences to all the smily

    Vaughan and Fay Minchin

  6. It’s so sad to hear Wendy passed away. Wendy has been a huge inspiration and shining light for me, my family and many others in the Netherlands. My sincere condolences for Conrad and her family, friends and her colleagues in the UK Support Group.

  7. Wendy put me in touch with the right people at the right time, when I thought all hope had gone. Without her I wouldn’t be typing this today. A true inspiration and stalwart promoter of Stickler awareness, I’m deeply saddened by her passing,

  8. When we struggled to understand what Stickler Syndrome was and how it would affect our baby, Wendy was there. When I produced a film to help others deal with Stickler Syndrome, Wendy was there. When I struggled with how Stickler Syndrome affected our family, Wendy was there. She had a smile, a positive perspective and always a helping hand. You will be missed but you have made a huge difference. Thoughts to Conrad and her boys from Canada.

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