By clicking “Accept All Cookies”, you agree to the storing of cookies on your device to enhance site navigation, analyze site usage, and assist in our marketing efforts. View our Privacy Policy for more information.

Privacy Preference Center

When you visit websites, they may store or retrieve data in your browser. This storage is often necessary for the basic functionality of the website. The storage may be used for marketing, analytics, and personalization of the site, such as storing your preferences. Privacy is important to us, so you have the option of disabling certain types of storage that may not be necessary for the basic functioning of the website. Blocking categories may impact your experience on the website.

Reject all cookies Allow all cookies

Manage Consent Preferences by Category

Essential

Always Active

These items are required to enable basic website functionality.

Marketing

Essential

These items are used to deliver advertising that is more relevant to you and your interests. They may also be used to limit the number of times you see an advertisement and measure the effectiveness of advertising campaigns. Advertising networks usually place them with the website operator’s permission.

Personalization

Essential

These items allow the website to remember choices you make (such as your user name, language, or the region you are in) and provide enhanced, more personal features. For example, a website may provide you with local weather reports or traffic news by storing data about your current location.

Analytics

Essential

These items help the website operator understand how its website performs, how visitors interact with the site, and whether there may be technical issues. This storage type usually doesn’t collect information that identifies a visitor.

Confirm my preferences and close

Membership

We've carried out a wide sweep of contacting as many people as possible on the existing membership database. It looks like a full review of 'membership', and addressing the purpose and benefits of a renewed database, will need to be a wider conversation for later in the year.

Looking directly at membership benefits over time by working with partners, securing charitable funding and developing the charity to meet the challenges of 2024 and beyond.
Facilitating and organising a range of community events, large and small, physical and online to allow us to reach everyone across the UK – discussing a wide range of topics on living with Stickler Syndrome. We are committed to having a wider reach in the longer term, but not for the purposes of revenue.
Become part of the team, and part of the whole conversation, by offering your services or support and help us to meet objectives as we grow and build our Stickler Syndrome community. Just drop us a message at contact@stickler.org.uk with a little bit of background info so we can get a good idea of where you might best help.

Watch this space for more information on how we build our community from the foundations of our existing membership...

Useful links